A map you can trust — because it shows its work
This site teaches the material your working group gathered about using Anthropic's Claude safely in rare-disease advocacy: folder access, secrets, data retention, HIPAA, Skills, and the questions still open. It is built for people doing patient-facing work who did not build these tools — plain language first, detail underneath, provenance on everything.
Why this exists (and why it looks the way it does)
Your document asked: “How can we control what sources Claude pulls from?” One working answer is a context graph — a curated set of fact files, one claim per file, each carrying its source, its retrieval date, and an honest confidence rating, that an AI assistant is instructed to answer from, instead of from its general memory. This site is that answer, demonstrated: every page you're reading is rendered from exactly such a graph, and the graph itself is what the group's assistant queries. Control the graph, and you control the sources.
How to read the chips
Every claim carries a chip that tells you how much to lean on it. Each state is marked three ways at once — colour, icon, and label — so it reads the same in colour, in greyscale, and to a screen reader. This legend is on every page.
How to read the chips
- Confirmed checked against Anthropic’s own page on the date shown, and the receipt kept.
- Documented carried from the working group’s document (context as of July 2026), not re-checked since.
- Stale risk known-volatile, or the check found a discrepancy — treat as a question, not a fact.
- compliance a claim a patient-data decision could hang on — always confirm with your Anthropic contact first.
- our practice the group’s recommended practice, not an Anthropic product fact.
The six modules
Folder & Desktop Access
Where you let Claude work is the whole ballgame — dedicated folders, tiers, and the delete gate.
5 findings (4 confirmed · 1 not re-checked) · 5 questions for the contactAPI Keys & Secrets
Credentials never travel through a conversation — where secrets should live instead.
5 practice recommendations (ours, not product facts) · 3 questions for the contactData Retention & What Goes Back
What happens to what you type — by plan, by surface, and the details that move.
5 findings (5 confirmed) · 6 questions for the contactHIPAA & Patient Privacy
Read slowly: most ways of using Claude are never covered for PHI. The two that can be, and how.
6 findings (6 confirmed) · 9 questions for the contactSkills
Teach Claude your org’s way of doing a task once — and know the one retention edge.
6 findings (5 confirmed · 1 flagged) · 4 questions for the contact · 5 worked examplesCross-Cutting Questions
Connectors, multi-org siloing, staying current, trusting outputs — and why this site exists.
2 findings (2 confirmed) · 14 questions for the contactThe call agenda
Every open question across all six modules, consolidated and printable: the Open-Questions Register — the working group's agenda for its Anthropic contact. Currency baseline: 22 of 29 findings confirmed against primary sources, last verified 2026-07-28.